I feel so bad that I have neglected our blog the last two weeks!! It has been rather hectic for us. Lots of doctor visits, tests, and exercise along with a couple of days that found me not feeling too well.
Last week we received news from our coordinator at Duke that led us to believe that we were on the verge of being listed. That got us so excited!! BUT, it was not to be. She tells us that the transplant team changed their minds and decided that I had to continue to focus on gaining weight and that my goal is 105. I weighed 95 at my last doctor visit. So 10 pounds to go. To help me with this goal they are scheduling the procedure to insert a feeding tube so that I can supplement what I am doing even more. We are waiting on our coordinator to let us now when. We think I may have to be in the hospital overnight but not really sure.
We are continuing to enjoy our stay in Spring Hill Park. The folks here are very nice and helpful. One of the ladies who lives here permanently has agreed to help us out with our fur babies when I have to be away for any length of time and also when I get called for my transplant. She is so nice!
We were hoping to have some great news by now. I know that Duke is doing everything they can to make sure that my transplant will be a complete success so I am trying not to be too disappointed with the further delay!
Hope everyone out there in blog land is doing well!! Safe travels to you all!!