I feel so bad that I have neglected our blog the last two weeks!! It has been rather hectic for us. Lots of doctor visits, tests, and exercise along with a couple of days that found me not feeling too well.
Last week we received news from our coordinator at Duke that led us to believe that we were on the verge of being listed. That got us so excited!! BUT, it was not to be. She tells us that the transplant team changed their minds and decided that I had to continue to focus on gaining weight and that my goal is 105. I weighed 95 at my last doctor visit. So 10 pounds to go. To help me with this goal they are scheduling the procedure to insert a feeding tube so that I can supplement what I am doing even more. We are waiting on our coordinator to let us now when. We think I may have to be in the hospital overnight but not really sure.
We are continuing to enjoy our stay in Spring Hill Park. The folks here are very nice and helpful. One of the ladies who lives here permanently has agreed to help us out with our fur babies when I have to be away for any length of time and also when I get called for my transplant. She is so nice!
We were hoping to have some great news by now. I know that Duke is doing everything they can to make sure that my transplant will be a complete success so I am trying not to be too disappointed with the further delay!
Hope everyone out there in blog land is doing well!! Safe travels to you all!!
I do not think I have ever prayed for anyone to gain weight! But that is my prayer for you! The feeding tube is not all that bad. John failed his speech therapy test, so had to have his tube reinstalled. Just remember to relax and swallow, swallow, swallow. Are they putting it into the stomach or small intestine?
ReplyDeleteI don't know any of the details yet. I am assuming that it will be stomach only but I don't really know. I am not having any swallowing issues, at least not yet..... Thanks for the encouragement!!
DeleteI'm so sorry you didn't get the news you had hoped for. I believe things happen for a reason.
ReplyDeleteYou should follow me around for a few weeks...I'm sure we could get 10 pounds on you. :)
That's so nice you found someone to help with the dogs. That will be one less thing to worry about.
Take care.
Thank you so much! Sure wish I could take a few pounds from some of the folks who have offered!! :)
DeleteSorry to hear about the delay, Sherry, but I'm guessing they want you at a certain weight so your transplant goes well.
ReplyDeleteGlad you found someone to take care of the pups. Think of you, often, and wondered when we'd hear from you.
Keep your chin up. Sure wish I could give you 10 of my pounds!
And I sure wish I could take them off your hands!! :)
DeleteThanks!!
I am with Karen. She said follow her around for a few weeks, I say I can do it in ONE week especially when we are in Mission, TX. Just go to every happy hour and all the events each night and you will end up going to Weight Watchers!
ReplyDeletePraying for good news about the feeding tube. ~wheresweaver
Thank you so much. All you bloggers out there help cheer me up!! :)
DeleteHere we are trying to take pounds off -- like others, I would gladly give you 10 lbs -- or more:o) Hang in there -- it will happen!! Sry we left before we got to actually meet you -- we did get to talk to Charley once. We will just have to meet down the road! We think of you often and you are in our prayers...God bless!
ReplyDeleteYou are so nice!! Thank you for the kind words and the offer of the 10 pounds!! I just wish it was that easy!!
DeleteHang in there Sherry. The docs want you at your optimal health before the transplant. You need everything stacked in your favor.
ReplyDeleteAs others have said, I'd gladly give you 10# but if you were able to accept all offers, you'd have a much different problem :)
Good luck with the feeding tube and eat, eat, eat!
Thank you so much!! Everyone is so kind to offer me their extra weight!! If there was just a way.....
DeleteYou may have had this offer before, but I have roughly 10 pounds around my middle you're welcome to.
ReplyDeleteYou can take it any time. If I could figure out how to get it off me and onto you, that's the thing.
I wish there was a way..... but I would not take it from everyone.... maybe we could have a lottery!! :)
DeleteSorry to hear about the delay, but having to gain weight cannot be the worse task to be be given:)
ReplyDeleteIn a normal world that would be true, but when you have been working on the weight gain and all the other stuff for over three months it gets a little frustrating..... but we will survive!!
DeleteThanks!
So good to see an update from you guys. When my late husband was trying to gain weight after his surgery/radiation, I made him mega-calorie shakes he could sip on.
ReplyDeleteUsed the Boost or Ensure Plus, full fat yogurt, sometimes a scoop of ice cream, then bananas or berries for flavor. They topped off around 1500 calories a shake. ;-)
Thank you Donna!! That sounds like a very good shake. We have been trying various ones, some are good and some are not so good. We are planning on trying this tomorrow!!
DeleteGood to see the update. I am sure the new plan will get you there. I could offer a diet that would result in the weight gain but I am sure it would not meet with much approval there at Duke.
ReplyDeleteThanks for the encouragement. What kind of diet could you be talking about??
DeleteOh how I wish I could send you 10 pounds...even more if you want. We will certainly be praying for those 10 pounds to hurry up for you.
ReplyDeleteDon't worry about your blog...we will always be here for you!! Take care!!
Our blog community has the nicest people in it. This is such a nice, encouraging note and I really do appreciate it. I am a little nervous about the feeding tube but I am sure it will go okay.
ReplyDeleteThanks again!!