This week has gone pretty well. Went to rehab every day that I could. Their air conditioner broke down one day and we were sent home (thank goodness!!). And I had clinic appointments almost all day on Friday. I am improving a lot in most of the exercises. The one thing that is still slow coming back is walking. My breathing is just not strong at all.
One of my appointments was just a follow up from all the pneumonia/infection excitement that we have had. Had a chest xray but do not know the results of that yet. Hope to hear something tomorrow. Doctor indicated that she thought I was doing well. She also indicated that I am discussed at each of their Tuesday committee meetings on who gets listed. That makes me feel that I am not being forgotten or overlooked!
I also had a test Friday afternoon that I have never heard of. It is called an EMG and is a test for your muscle and nerve health. This is the test that was ordered after they saw an abnormality in a blood test for my muscles that one of the doctors ordered a couple of weeks ago. Don’t know the results of that either but the two doctors who conducted the test were surprised at my arm and leg strength. One thing that Charley and I have decided is to not get our hopes up about being listed, but to be surprised when it happens!!
On a happier note, Charley and I went car shopping yesterday and came home with a Honda CR-V. I drove it home and what a smooth ride compared to our Super Duty Ford truck!! It will also get much better fuel mileage driving back and forth to Duke every day and will also be easier to park. We are going to need it after we get through my transplant and get to go back home as well. I will be having to come back to Duke for monthly checkups for a while, then quarterly, etc. We had already decided that we would not drag the 5er back and forth for this. We will also be able to tow it, if we need it for any of our trips later.
Stay tuned everybody and keep those prayers coming!! We will be doing a special post when we do get listed!!