Well, we finished our evaluation at Duke yesterday afternoon. It was five full days of medical tests and consultations that took its toll on our energy!! We were too tired to do anything but grab a bite to eat and crash every day.
We now will be waiting to hear the official word on my status by the end of next week. Based on what we heard this week, I will have to gain some weight and go through some pulmonary rehab before I make the list. We will be working on gaining some weight starting now until we get the official word on next steps for a lung transplant.
Duke is very thorough in their testing. I have never had a physical anything like what they put me through! It is good to know that they did not find anything else wrong that we know of right now.
We did meet a couple of transplant patients who have been through the surgery and are doing well. One lady we met was 13 days past her actual transplant and she looked wonderful and was so happy. Her story was very encouraging and she could not say enough about how it is all worth it and to do whatever it takes to get to the point of transplant. It sounded like she was in about the same shape that I am in when she first started the process.
So we will do what we can to put some weight on my skinny bones while we wait for the word. Will keep you posted on our progress.
We will be staying here in Chapel Hill until Monday morning and then will be heading back to our son’s place in Blythewood, SC. We have to drop the 5er off for some work on our way. She will be there for a couple of days getting her gray tank replaced and being checked for other possible leaks.
Safe travels everyone!!